ISBN:
9780415316804
Language:
English
Pages:
Online-Ressource (225 p)
Parallel Title:
Print version Genetic Databases : Socio-Ethical Issues in the Collection and Use of DNA
DDC:
174.957
Keywords:
Electronic books
Abstract:
Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical debates in the fields of sociology, anthropology and legal studies, the contributors to this book challenge the prevailing orthodoxy of informed consent and explore the relationship between personal privacy and the public good. They also consider the multiple meanings attached to human tissue and the role of public consultations and commercial involvemen
Description / Table of Contents:
Genetic databases Socio-ethical issues in the collection and use of DNA; Copyright; Contents; Foreword; Contributors; Acknowledgements; Chapter 1 Introduction: public participation in genetic databases; Chapter 2 Person, property and gift: exploring languages of tissue donation to biomedical research; Chapter 3 Blood donation for genetic research: what can we learn from donors' narratives?; Chapter 4 Levels and styles of participation in genetic databases: a case study of the North Cumbria Community Genetics Project
Description / Table of Contents:
Chapter 5 Informed consent: the contradictory ethical safeguards in pharmacogeneticsChapter 6 Ambiguous gifts: public anxiety, informed consent and biobanks; Chapter 7 Abandoning informed consent: the case of genetic research in population collections; Chapter 8 Children's participation in genetic epidemiology: consent and control; Chapter 9 'Public consent' or 'scientific citizenship'? What counts as public participation in population-based DNA collections?; Chapter 10 Tissue collection and the pharmaceutical industry: investigating corporate biobanks; Index
Note:
Description based upon print version of record
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