ISBN:
9783036593609
,
9783036593616
Language:
Undetermined
Pages:
1 Online-Ressource (358 p.)
Keywords:
Humanities
;
Social interaction
;
Adolescence
;
Adulthood
;
Apnea
;
Apnea-hypopnea index
;
Bedbound
;
Cardiac Function
;
Cardiopulmonary Exercise Testing
;
Caregivers
;
Case Study
;
Cerebral Blood Flow
;
Chronic Fatigue Syndrome
;
Clinical Presentation
;
Compassion In Practice
;
Diagnosis
;
Economic Impact
;
Education
;
Enteral Nutrition
;
EUROMENE
;
Europe-Wide
;
Grief
;
Homebound
;
Illness progression
;
Immunoglobulin Therapy
;
Infection
;
Isolation
;
IVIgG
;
Jarisch&ndash
;
Herxheimer Reaction
;
Laboratory Tests
;
Lived experience
;
Loss
;
Malnutrition
;
Mental Health
;
ME/CFS
;
Moderately Ill
;
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
;
Orthostatic Stress
;
Parenteral nutrition
;
Patient Assessment
;
Patient Management
;
Prevention
;
Psychological Causation
;
Psychosocial
;
Severely Ill
;
Sleep
;
Social Isolation
;
Stigma
;
Student Learning
;
Suicidality
;
Symptoms
;
Telemedicine
;
Trauma
;
Treatment
;
Tube feeding
;
Very Severely III
Abstract:
Manuscripts in this monograph are sorted into five categories: 1. Case Reports: a description of living as a bedridden patient; structured interviews with severely affected ME/CFS patients; how past events contribute to severe ME/CFS; a comparison of moderately ill, severely ill, and very severely ill; case reports of ME/CFS in children. 2. A healthcare provider’s view of managing ME/CFS patients. 3. Characterization of the Severely and Very Severely Affected: (1) the most troubling symptoms; (2) disease severity diminishes capacity for exercise, (3) operationalized definitions of the severely ill and very severely ill; (4) the usefulness of a modified Korean Chalder Fatigue Scale Questionnaire; (5) cardiac dimensions and function in patients; (6) an easier tilt test; and (7) review of sleep studies. 4. Progress in Diagnosis and Treatment: (1) objective measures for grading ME/CFS; (2) a sitting tilt test for orthostatic intolerance; (3) the benefits of IVIgG; (4) risks and protective factors in suicidality; (5) malnutrition and overcoming it; (7) partnerships between patients, caregivers, and providers, and the use of technology; (8) a holistic model of care, “Compassion in Practice; and (9) the effects of suffering, utilizing a four-phase model. 5. Impact of the Disease: (1) a historical perspective; (2) the impact of ME/CFS on psychosocial dynamics; (3) the educational needs of school-aged; and (4) the economic impact of ME/CFS
Note:
English
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