ISBN:
9783642331169
,
1299336701
,
9781299336704
Sprache:
Englisch
Seiten:
Online-Ressource (VIII, 339 p. 8 illus, digital)
Serie:
SpringerLink
Serie:
Bücher
Paralleltitel:
Buchausg. u.d.T. Comparative issues in the governance of research biobanks
DDC:
174.957
Schlagwort(e):
Medicine
;
Bioinformatics
;
Public health laws
;
Law
;
Law
;
Medicine
;
Bioinformatics
;
Public health laws
;
Konferenzschrift 2010
;
USA
;
Großbritannien
;
Italien
;
Rechtsvergleich
;
Biobank
;
Eigentum
Kurzfassung:
In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property
Beschreibung / Inhaltsverzeichnis:
From the contents: Property and Privacy in Biobanking -- Intellectual Property and Biobanks -- Biobanks: The Perspective of Biobanker's.
Beschreibung / Inhaltsverzeichnis:
5.5 Ownership of a Collection of Information5.6 Ownership of the Outcomes of Research; 5.7 Conclusions; References; Chapter 6: Human Tissues in the ``Public Space´´: Beyond the Property/Privacy Dichotomy; 6.1 HBMs: A Normative Puzzle; 6.2 Legal Strategies: The Myth of Privacy, the Denial of the Body; 6.3 The US Normative Framework: Privacy vs. Property and the Abandoned Gift; 6.4 The European Normative Framework: Heteronomous Autonomy and the ``Right to Destroy´´ the Donated Body; 6.4.1 The EU Institutions; 6.4.2 The Council of Europe; 6.5 Beyond Privacy and Property: The Participatory Turn
Anmerkung:
Description based upon print version of record
DOI:
10.1007/978-3-642-33116-9
URL:
Volltext
(lizenzpflichtig)
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