ISBN:
9789400716735
Language:
English
Pages:
Online-Ressource (VIII, 238p. 4 illus, digital)
Series Statement:
The International Library of Ethics, Law and Technology 8
Series Statement:
SpringerLink
Series Statement:
Bücher
Parallel Title:
Buchausg. u.d.T. Biobanks and tissue research
Keywords:
Transplantation of organs, tissues, etc
;
Medicine & Public Health
;
Medicine
;
Cytology
;
Transplantation of organs, tissu
;
Medicine
;
Transplantation of organs, tissues, etc
;
Cytology
Abstract:
Biobanks, tissue research and the public -- Public trust and public bodies: The regulation of the use of human tissue for research in the United Kingdom, Julie Kent, Ruud ter Meulen -- Biobanks and research: scientific promise and regulatory challenge, Bernice S. Elger, Nikola Biller-Andorno.- A sense of entitlement: individual vs. public interest in human tissue, Nils Hoppe -- Social aspects of biobanking: Beyond the public/private distinction and inside the relationship between the body and identity Federico Neresini -- The Rights of donors and patients -- One sample, one share! A proposal to redress an inequity with equity , Jasper A. Bovenberg -- Research on human biological materials: What consent is needed, and when. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Jurate Serepkaite -- Reconsidering consent and biobanking, Emma Bullock, Heather Widdows -- What’s wrong with forensic uses of biobanks?, Claudio Tamburrini Regulation of tissue research -- A unified European approach on tissue research and biobanking? A comparison, Katharina Beier, Christian Lenk -- Ireland and the United Kingdom’s approaches to regulation of research involving human tissue, Elizabeth Yuko, Adam McAuley, Bert Gordijn -- Legal and ethical aspects of biobanks for research in the European-Mediterranean area, Renzo Pegoraro, Allesandra Bernardi, Fabrizio Turoldo -- The circulation of human body parts and products: when exclusive property rights mask the issue of access, Florence Bellivier, Christine Noiville -- The question of anonymity and privacy in biobanking, Judit Sándor, Petra Bárd
Abstract:
The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.
Description / Table of Contents:
pt. 1. Biobanks, tissue research and the public -- pt. 2. The rights of donors and patients -- pt. 3. Regulation of tissue research.
Note:
Includes bibliographical references and index
DOI:
10.1007/978-94-007-1673-5
URL:
Volltext
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